Pain – Patient Support Groups

This list shows charity members of Pain UK

Ask these charities and organisations for patient resources: information leaflets, posters, etc. View the details below or download this list as a PDF, here

Support GroupTelephone
Number		Website AddressEmail Address
Affa Sairn/aaffasair.orgaffasair@gmail.com
ASTRiiDn/aastriid.org.ukpippa.stacey@astriid.org
BackCare0208 977 5474backcare.org.ukinfo@backcare.org.uk
Bladder Health UK0121 7020820bladderhealthuk.orginfo@bladderhealthuk.org
British Polio Fellowship0800 043 1935britishpolio.org.ukinfo@britishpolio.org.uk
Burning Nights (CRPS)01663 795055burningnightscrps.orgvictoria@burningnightscrps.org
Chronically Awesomen/achronicallyawesome.org.ukchronicallyawesome.org.u
k/contact-us
CRPS UKn/acrps-uk.orgadmin@crps-uk.org
Crohn’s and Colitis UK01727 830038crohnsandcolitis.org.ukJess.Turner@crohnsandcolitis.org.uk
Dystonia UK020 7793 6351dystonia.org.ukinfo@dystonia.org.uk
Ectodermal Dysplasia Society01242 261332edsociety.co.ukdiana@edsociety.co.uk
Ehlers Danlos Support UK0208 736 5604ehlers-danlos.orginfo@ehlers-danlos.org
Endometriosis UK020 7222 2781endometriosis-uk.orgclairekelleher@endometriosis-
uk.org
Fibromyalgia Action UK0141 370 3940fmauk.orghead.office@fmauk.org
GAIN (Guillain-Barré & Associated Inflammatory
Neuropathies)		01529 469910gaincharity.org.ukoffice@gaincharity.org.uk
Groundswell020 7725 2851groundswell.org.ukinfo@groundswell.org.uk
GUTS UK020 7486 0341gutscharity.org.ukjthompson@gutscharity.org.uk
Herpes Viruses Association020 7607 9661herpes.org.ukinfo@herpes.org.uk
Hidradenitis Suppurativa Trust–On Facebook only–
Hypermobility Syndromes
Association		03330 116 388hypermobility.orgLisa.bone@hypermobility.org
The IBS Network0114 272 3253theibsnetwork.orginfo@theibsnetwork.org
Limbless Association01245 216670limbless-association.orgenquiries@limbless-
association.org
Lipoedema UK07747 033757lipoedema.co.ukinfo@lipoedema.co.uk
Lupus UK01708 731251lupusuk.org.ukheadoffice@lupusuk.org.uk
Marfan Trust03330 115256marfantrust.orginfo@marfantrust.org
Migraine Trust0203 9510 150migrainetrust.orgksanger@migrainetrust.org
Muscular Dystrophy UK020 7803 4800musculardystrophyuk.orginfo@musculardystrophyuk.org
National Axial Spondyloarthritis Society020 8741 1515nass.co.ukadmin@nass.co.uk
National Rheumatoid Arthritis
Society (NRAS)		01628 823524/
0800 2987650		nras.org.ukhelpline@nras.org.uk
Paget’s Association0161 799 4646paget.org.ukdiana.wilkinson@paget.org.uk
Pain Association Scotland01738 629503painassociation.co.ukSCottom@painassociation.com
Pain Relief Foundation0151 529 5820painrelieffoundation.org.ukjo.stephens@painrelieffoundatio
n.org.uk
Pain Support Jersey07797 952165painsupportjersey.compsjersey15@gmail.com
Patient’s Association020 8423 9111patients-association.org.ukSarah.Tilsed@patients-
association.org.uk
Pelvic Pain Support Networkn/apelvicpain.org.ukinfo@pelvicpain.org.uk
PKD Charity (Polycystic
Kidney Disease)		0300 111 1234pkdcharity.org.ukpkdcharity.org.uk/about-
us/contact-us
Polio Survivors Network01522 888601poliosurvivorsnetwork.org.ukadmin@poliosurvivorsnetwork.
org.uk
Royal Osteoporosis Society0808 800 0035theros.org.uknurses@theros.org.uk
Sarcoidosis UK020 3389 7221sarcoidosisuk.orgInfo@sarcoidosisuk.org
Scleroderma and Raynaud’s UK020 3893 5998sruk.co.ukinfo@sruk.co.uk
Scoliosis Association UK020 8964 1166sauk.org.ukcommunciations@sauk.org.uk
Sickle Cell Society020 8961 7795sicklecellsociety.orgjohn.james@sicklecellsociety.org
Shingles Support Society0207 607 9661shinglessupport.org.ukinfo@shinglessupport.org.uk
Spinal Injuries Association01908 604 191spinal.co.ukd.burden@spinal.co.uk
Trigeminal Neuralgia Association UK0800 999 1899tna.org.ukadmin@TNA.org.uk
Versus Arthritis0300 7900 456versusarthritis.orgeqnquries@versusarthritis.org
Vulval Pain Societyn/avulvalpainsociety.orginfo@vulvalpainsociety.org