Muscular Dystrophy Campaign
The Muscular Dystrophy Campaign is the leading UK charity dedicated to beating muscle-wasting conditions by finding treatments and cures and to improving the lives of everyone affected by them. We rely on the support of people like you to continue our vital work.
The Muscular Dystrophy Campaign is the leading UK charity focusing on muscular dystrophy and other related conditions. We are dedicated to beating muscular dystrophy and other related conditions by finding treatments and cures and to improving the lives of everyone affected by them.
Muscular dystrophy and related neuromuscular conditions are regarded as rare and, in many cases, even ultra-rare conditions. There are currently no efficient treatments or cures available for most of these conditions. Research, however, advances fast and a number of clinical trials to test the clinical benefit of promising technology are under way.
Over more than 50 years, the charity has contributed to crucial scientific breakthroughs in the field of muscular dystrophy and related neuromuscular conditions such as: laying the foundations for the promising technology of ‘exon skipping’ which is currently being tested in clinical trials for boys with Duchenne muscular dystrophy, and funding work that has led to a scientific breakthrough in finding a treatment for mitochondrial myopathy, which is now close to clinical trial.
Scientists and clinicians are beginning to express cautious optimism that treatments might become a reality in the near future, but to do this we need to continue to fund research. We aim to find treatments and ultimately cures for muscular dystrophy and related neuromuscular conditions and improve the lives of everyone affected by them and we need your help to do this.
Our work has five main focuses:
- we fund world-class research to find effective treatments and cures
- we provide practical information, advice and emotional support for individuals with muscular dystrophy and other related conditions, their carers and families
- we campaign to bring about change and raise awareness of muscular dystrophy and other related conditions
- we award grants towards the cost of specialist equipment, such as powered wheelchairs
- we provide specialist education and development for health professionals.
If you have just received a diagnosis of a muscle-wasting condition, whether you suspected it or not, it’s likely to be a huge shock to you.
When you are first diagnosed it can be difficult to take in what it means for you, your family, friends and colleagues. Make sure that you take your time to gather information about your condition. There are more than 60 different types of muscle-wasting conditions and they all affect people differently. You will then need to start making contact with the people who will be involved in your longer term care.
For more information on any of the issues raised below, please contact us