Scleroderma & Raynaud's UK

Scleroderma & Raynaud’s UK

The Scleroderma Society was founded in 1982 to provide support for both people with scleroderma and their families. Doctors specialising in this field were aware that people with scleroderma often felt isolated and alone given the rarity of the condition, so the Society was established to provide support and information about scleroderma to anyone affected.


Since its birth, the Society has developed considerably and continues to expand its activities, membership numbers and the services it offers.

The Society is a UK registered charity and from its inception in 1982 until 2012, operated on an entirely voluntary basis by a team of dedicated volunteers and trustees. 2012 saw the appointment of the Society’s first paid member of staff, brought onboard to direct the Society forward to fulfill its potential. Everyone involved in the Society cares deeply about raising awareness and research for this rare condition and supporting those diagnosed with it.

We are a well-respected and trusted organisation both in the UK and internationally, with a reputation for providing reliable and excellent information on scleroderma as well as for keeping members informed with up-to-date news and research from the world of scleroderma.

We are very privileged to have Professor Dame Carol Black as our president and Professor Chris Denton and Professor Ariane Herrick as our vice presidents.


The Scleroderma Society was founded to help support people who have been diagnosed with scleroderma; it is what we are here for.

We support people with scleroderma in a variety of ways but if there is a different way in which we can support you, please get in touch.

Our freephone helpline is run entirely by volunteers, the majority of whom have scleroderma themselves. We cannot offer medical advice but we can point you in the right direction for further information. We can also offer a place where you can talk to someone who really understands scleroderma and how it can impact on you, family members and friends.

Don’t feel isolated and on your own – call 0800 311 2756.

Contact Scleroderma & Raynauds UK

We are a very small team so please bear with us if we do not answer the telephone immediately. Please leave a message and we will get back to you as soon as possible. If you are looking to contact someone in particular, you can send a letter to the Society or contact individuals by email:

Scleroderma & Raynauds UK
Bride House
18-20 Bride Lane

Phone: 020 3893 5998

General Enquiries:


Share this Page