SarcoidosisUK was founded in 1997 and has been helping people with sarcoidosis ever since. Sarcoidosis is a rare disease and suffers from poor quality information, low levels of support and almost no research into finding a cure. SarcoidosisUK works to change that.
SarcoidosisUK has four goals:
- Information: Providing accurate and detailed information to people with sarcoidosis, their carers, and medical professionals.
- Support: We provide emotional support for people with sarcoidosis and their carers by telephone, email, via social media and at our support groups across the UK.
- Finding a cure: SarcoidosisUK raises funds and invests them into focused medical research that works directly to finding a cure for sarcoidosis.
- Awareness: We recognise the lack of understanding and awareness from both the medical profession and the general public regarding sarcoidosis. We aim to change this.
Sarcoidosis is a condition where lumps called granulomas develop at different sites within the body. Granulomas are made up of clusters of cells involved in inflammation. If many granulomas form in an organ, they can prevent that organ from working properly. Sarcoidosis can affect many different parts of the body – its cause is not known and there is no cure.
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