The PKD Charity is the only UK charity solely dedicated to improving the lives of an estimated 70,000 individuals and their families affected by polycystic kidney disease (PKD) in the UK.
PKD is a range of life-threatening inherited conditions that can cause kidney failure and affect other organs in the body such as the liver, brain, heart and bowels. Most people with PKD live with an uncertain prognosis, pain and infections, and then have to undergo life-saving dialysis or transplant in their 50s. A few babies have a rare form of PKD which results in death during pregnancy or shortly after birth; the surviving children often have to have either a kidney or liver transplant before the age of 10.
OUR CORE ACTIVITIES
- We publish reliable, PIF TICK-accredited information.
- We hold educational events, in-person and online throughout the year, with the support of healthcare professionals.
- We have local support groups and provide personalised peer support via our helpline and Facebook groups.
- We raise awareness of the burden of PKD, both clinical and psychosocial.
- We fund research aimed at understanding more about PKD and the discovery of therapies that will improve quality and longevity of life.
CONTACT THE PKD CHARITY
Helpline: 0300 123 111 (Mon-Fri 9.30am-5pm)
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