5th August 2020 Pain UK welcomes the NICE published consultation on their DRAFT guideline for the management of chronic primary pain. Pain UK will be working with its members to respond to NICE. We understand that people who live with chronic primary pain may be concerned by some of the headlines around the draft guideline, we will be sending out …
Finding Fulfilling Work Whilst Living With Pain
This article was written by our member Astriid Living with the struggles of chronic pain can affect every single aspect of your life. For those who haven’t experienced it for themselves, there can often be a real lack of understanding as to just how debilitating such an experience can be. As such, it isn’t surprising that much of this uncertainty …
Making medicines safer for everyone – the Yellow Card Scheme
Many of us take medicines every day, to ameliorate symptoms, to treat and prevent disease. Medicines are essential for many people, unfortunately there is no perfect medicine, all medicines can cause unwanted side effects (sometimes called adverse drug reactions), in some people. Many side effects are mild, but some can be serious and even life-threatening. The more information we have …
Surviving Pain: The Early Days
An Interview with Antony Chuter, Chairman of Pain UK An invisible illness, chronic pain is a condition that is currently affecting around 43% of the United Kingdom’s population, but is scarcely discussed and seldom accorded the recognition it deserves. What’s more, there are around 8 million adults living with pain that is moderate to severely disabling, yet shockingly, this chronic …
Benefits information for patients suffering from pain
Matthew Jay of Camden Citizens Advice Bureau and Great Ormond Street Hospital has kindly provided Pain UK with the information within this document to give insight to the benefits system within the UK. The document outlines the various benefits that are available accompanied with an explanation for what they are. This is intended to be an informative document for those who wish to learn …
Could music therapy help you cope with pain?
I became interested in exploring effective pain management strategies because of my own experience of long-term pain due to a genetic condition called Marfan Syndrome. During my training as a music therapist at Queen Margaret University in Edinburgh, I began considering the possibility of using music therapy to help: listening to music provides an alternative stimulus that can help draw …
Recognising endometriosis is the secret to early treatment
We hope that none of our readers will have daughters/grandaughters with endometriosis. Perhaps this piece from Endometriosis UK will help you to recognise the problem if it arises in a girl you know. Whilst the majority of endo diagnoses are made in adult women, it is becoming apparent that, endometriosis is a disease of adulthood that has its onset in adolescence. …
Get “text donations” sent to you for free by JustTextGiving
Recently, our trustees have been asking if there was any need for our charity to have a ‘giving’ page for people who want to raise money from friends and relatives when they do a run/climb/swim/ride, etc. The cost of setting up such a page, and the on-going costs of each donation had put us off. Then we learnt of two CHEAP/FREE on-line fundraising …
Get university staff to adopt your charity
Marfan Syndrome UK have developed a great relationship with Stirling University Staff. Why not find out if a university near you has any sort of support for charities? From a poster in the common room about a challenge, to being a charity that students raise money for on ‘rag day’ – once you have made the contact, this can be a year-on-year source …
The Pain UK Call to Action
Today, on the 14th July 2015, the Chairman of Pain UK delivered 651 letters addressed to each member of Parliament, at the House of Commons. This was done to introduce the MPs to some of the issues that people who live with or in pain deal with on a daily basis. We included the Pain UK Call to Action. The Call to Action is …
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