Tourette’s Action
Tourette’s Action is the only UK-wide charity dedicated to supporting individuals with Tourette syndrome and their families. Our staff, volunteers and supporters are engaged and energised in driving forward our mission. Everything we do is grounded in our community’s needs and informed by the voices of our community and research-based evidence.
Tourette syndrome is a genetically determined neurological condition. The key features are tics – involuntary sounds and movements, which must be present for at least 12 months to meet the diagnostic criteria. Up to 85% of people with TS will also experience co-occurring conditions and features which might include attention deficit hyperactivity disorder (ADHD), obsessive compulsive disorder (OCD), and anxiety.
The biggest misconception around TS is that everybody with the condition will swear or say socially inappropriate things. Coprolalia is the clinical term for tics that produce socially unacceptable words; and only approximately 10-30% of people with TS have this symptom.
Who has TS?
It is estimated that TS affects one school child in every hundred and more than 300,000 children and adults in the UK live with the condition.
What does Tourettes Action do:
We provide a Helpdesk offering support via our website Live Chat service
- Online Support groups and In-Person Support groups
- Identity cards and school passports
- Residential Events for families, adults with TS and teenagers
- Grants of up to £500 to help improve the quality of life for people living with TS
- E-newsletter
- Support based information and services for people with TS and their families:
- Education – Information for parents, students and education professionals
- Employment – support for employers and employees
- Benefits – information relating to disability law, benefits, public services, housing and transport
- E-Learning Modules – CPD Accredited learning
You can find much more on our website https://www.tourettes-action.org.uk/
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