PAPAA: Psoriasis and Psoriatic Arthritis Alliance

The Psoriasis and Psoriatic Arthritis Alliance (PAPAA) is a UK-based charity supporting people living with psoriasis and psoriatic arthritis, conditions that can cause persistent pain, joint stiffness and fatigue alongside visible skin symptoms. The organisation provides independent, evidence-based information and support to patients, carers and healthcare professionals to help them understand psoriatic disease, manage pain and other symptoms, and make informed decisions about treatment and self-management.

PAPAA offers an extensive web-based resource that covers the full spectrum of psoriatic disease, including musculoskeletal pain, skin symptoms, flares, and associated comorbidities such as cardiovascular disease, obesity, diabetes, metabolic syndrome, depression and anxiety.

This is complemented by a wide range of printed and digital publications, including patient information leaflets, detailed treatment and self-management guides, and clinical resources developed with expert input and regularly updated to reflect current research and best practice.

The charity actively supports and promotes research into psoriasis and psoriatic arthritis, across a wide range of patient-centred outcomes. PAPAA works with national bodies and agencies such as NICE, MHRA and NIHR, as well as clinicians, researchers and partner charities, to ensure that patient experience and the broader burden of psoriatic disease are reflected in guidance, safety monitoring and research priorities, and that new evidence is communicated clearly to those affected.

PAPAA delivers education and awareness initiatives for both patients and healthcare professionals, highlighting the physical and psychological impact of psoriatic disease, including stiffness, fatigue and comorbid conditions such as cardiovascular risk, obesity and mental health problems in people affected. Through its website and active social media presence, the organisation provides up-to-date information, real-life stories and signposting to additional support, helping people living with the symptoms and wider health impacts of psoriasis and psoriatic arthritis to feel informed, understood and less isolated.

By combining trusted information, extensive online resources, high-quality publications and collaboration with national agencies and the wider community, PAPAA works to improve recognition, management and overall quality of life for people living with painful and complex psoriatic disease across the UK.
To access all of PAPAA resources go to www.papaa.org where links can also be found to all their active social media pages.

Contact the Psoriasis and Psoriatic Arthritis Alliance (PAPAA)

Contact the Psoriasis and Psoriatic Arthritis Alliance (PAPAA) for expert information, support and guidance on psoriasis, psoriatic arthritis and related conditions, including self-help, treatment options and signposting to other sources of help and support:

Website: www.papaa.org
Email: info@papaa.org
Telephone: 01923 672837 (Weekdays 9:30 – 4:30)
Address: PAPAA. PO Box 111, St Albans. AL2 3JQ.
Charity number: 1118192