Matthew Jay of Camden Citizens Advice Bureau and Great Ormond Street Hospital has kindly provided Pain UK with the information within this document to give insight to the benefits system within the UK. The document outlines the various benefits that are available accompanied with an explanation for what they are. This is intended to be an informative document for those who wish to learn …
Could music therapy help you cope with pain?
I became interested in exploring effective pain management strategies because of my own experience of long-term pain due to a genetic condition called Marfan Syndrome. During my training as a music therapist at Queen Margaret University in Edinburgh, I began considering the possibility of using music therapy to help: listening to music provides an alternative stimulus that can help draw …
Recognising endometriosis is the secret to early treatment
We hope that none of our readers will have daughters/grandaughters with endometriosis. Perhaps this piece from Endometriosis UK will help you to recognise the problem if it arises in a girl you know. Whilst the majority of endo diagnoses are made in adult women, it is becoming apparent that, endometriosis is a disease of adulthood that has its onset in adolescence. …
Get “text donations” sent to you for free by JustTextGiving
Recently, our trustees have been asking if there was any need for our charity to have a ‘giving’ page for people who want to raise money from friends and relatives when they do a run/climb/swim/ride, etc. The cost of setting up such a page, and the on-going costs of each donation had put us off. Then we learnt of two CHEAP/FREE on-line fundraising …
Get university staff to adopt your charity
Marfan Syndrome UK have developed a great relationship with Stirling University Staff. Why not find out if a university near you has any sort of support for charities? From a poster in the common room about a challenge, to being a charity that students raise money for on ‘rag day’ – once you have made the contact, this can be a year-on-year source …
The Pain UK Call to Action
Today, on the 14th July 2015, the Chairman of Pain UK delivered 651 letters addressed to each member of Parliament, at the House of Commons. This was done to introduce the MPs to some of the issues that people who live with or in pain deal with on a daily basis. We included the Pain UK Call to Action. The Call to Action is …
VPS Super Workshop: Saturday 9 May 2015
The Vulval Pain Society Super Workshop will be held on Saturday 9 May 2015 in the Lecture theatre, BO1, basement of The Clore Management Centre, Torrington Square, Bloomsbury, London, WC1E 7JLmap Registration is at 9.00 am and the day will end at 4.00 pm. This event is geared towards women with vulval pain and their partners while health professionals are …
Revealed: Winner of the Pain UK Pain Champion Award 2014
We are delighted to announce that Pete Moore has been chosen as the Pain UK Pain Champion for 2014 by Pain UK, the British Pain Society and the Chronic Pain Policy Coalition. Five people were nominated by members of the three organisations for the award, which recognises the hours of unpaid work undertaken in the charitable sector to support people …
